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Rowen is diagnosed with a rare disorder known as Sanfilippo Syndrome. Only 1 in 100,000 humans have this diagnosis. Rowen's life expectancy is 14 years but his family finds joy in the present moment. His sister shares "We just try to live life with him now instead of focusing on what's going to happen in the future." | Special Books by Special Kids
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Rowen is diagnosed with a rare disorder known as Sanfilippo Syndrome. Only 1 in 100,000 humans have this diagnosis. Rowen's life expectancy is 14 years but his family finds joy in the present moment. His sister shares "We just try to live life with him now instead of focusing on what's going to happen in the future." | Special Books by Special Kids
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FacebookSpecial Books by Special Kids
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