Today is my birthday. I’m adding another year while my son Merrick is losing years to Sanfilippo syndrome. Sanfilippo syndrome is a rare and fatal childhood disease. Awareness matters. My birthday wish is for more time. For my son, and for all families living with Sanfilippo syndrome. #SanfilippoSyndrome #RareDiseaseMom birthdaywish | Hope for Merrick
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Today is my birthday. I’m adding another year while my son Merric…
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1.3K views · 36 reactions | As the years progress so does his...
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1.3K views · 36 reactions | As the years progress so does his...
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FacebookHope for Merrick
1.5K views · 28 reactions | Merrick has a rare neurodegenerative disease called Sanfilippo syndrome. We were excited to see a picture of him being a helper at school this week. He has struggled with tasks his whole life but recently things have been getting harder and harder for him as he loses skills. He was always the sweetest little helper. | Hope for Merrick | Facebook
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1.5K views · 28 reactions | Merrick has a rare neurodegenerative dise…
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10K views · 65 reactions | A "freak show" or "educational"? Disability campaigner Adam Pearson has spoken out against an event in which a replica of the body of Leicester's Joseph Merrick, known as the Elephant Man, will be dissected in front of a live audience. https://bbc.in/3isZxVY | BBC Nottingham | Facebook
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10K views · 65 reactions | A "freak show" or "educational"? Disabilit…
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The Elephant Man, Joseph Merrick, and His Very Rare Disease
The Elephant Man, Joseph Merrick, and His Very Rare Disease
Feb 18, 2022
hubpages.com
💜This is Merrick💜 He has a rare progressive terminal disease called Sanfilippo syndrome. He was diagnosed with speech delay when he was 2, then autism and ADHD when he was 4. He started to regress when he was 5/6 years old and we had no idea why. I searched for late regression in autistic kids and never found any answers. Last year when Merrick was 10 we were doing genetic testing for an unrelated eye disease that runs in my family and were blindsided by the results... We don’t know how long w
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💜This is Merrick💜 He has a rare progressive terminal disease calle…
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Joseph Merrick, aka "The Elephant Man" - Stuff You Should Know
Joseph Merrick, aka "The Elephant Man" - Stuff You Should Know
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15 reactions | 130 years ago, the world bid Joseph Merrick a final fa…
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78 reactions · 10 comments | Sir Frederick Treves, the surgeon wh…
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15K views · 70 reactions | This is Merrick he’s 11 now and last year...
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FacebookHope for Merrick
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2.5K views · 57 reactions | POV: Your only child is thrilled for his M…
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