Woman dubbed real life vampire after being diagnosed with rare condition

"Just 10 seconds of sun exposure would cause a reaction, and 30 seconds would put me in the hospital," Richardson told Newsweek.
sciencex

Survivors of severe drug reactions for SJS/TEN face long-lasting risk of heart disease, stroke, and related deaths

"A new nationwide study in Taiwan reveals that survivors of severe drug reactions—known as Stevens-Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN)—face a heightened risk of heart disease ...
People

Teen Recalls Being 'Gauzed Up Like a Mummy' After Rare Disease Left Her 'Burning from the Inside Out' (Exclusive)

“I vividly remember thinking, ‘Am I going to die?’” Paige LaCombe tells PEOPLE about her experience as a young girl Shriners Children's At 8 years old, Paige LaCombe was diagnosed with a rare and life ...
Medscape

Severe Adverse Skin Reactions to Nonsteroidal Antiinflammatory Drugs: A Review of the Literature

Purpose: Stevens-Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN) associated with the use of nonsteroidal antiinflammatory drugs (NSAIDs) are described. Summary: A search of the ...
Medscape

Stevens-Johnson Syndrome: Affects More than Just Skin

Most cases of SJS are probably a cell-mediated hypersensitivity reaction; in some cases monocytes and macrophages are present and auto-antibodies may be pathogenic. SJS is characterized by skin ...

Oakley Orange from Strood is wants to find a cure for Stevens-Johnson syndrome, the rare condition that nearly killed him when he was seven

When Oakley Orange was asked at the age of eight what he wanted to do when he grew up, he did not hesitate. While the other ...